The end is where we are going to start. This is the sentiment that I have experienced ever since I was unable to walk unaided, since I was diagnosed with fibromyalgia with hyper-mobility and since I announced a wheelchair, rather than an engagement or a pregnancy. Something changes, quickly, without reason or logic, and everyone else in the world seems to call time of death on your life. ‘You’ll never do…’, or ‘how will you ever…’
It all comes from a good place, mostly. A place of caring and confusion about why this happened. They say that they need time to adjust, that they feel bad, that they feel guilty.
But here’s a secret, folks. Here’s one of the things that you need to know. I don’t want your pity. Or your guilt, your bad feelings, your condolences, or anything else that you think is appropriate. It’s not appropriate. I’m not dead. I’m far from it. I’m going travelling, going to see the world with the love of my life, eat great food, visit amazing places, learn so many things and live. The only thing I need anyone to feel is HAPPY. Happy that I’m me, happy that I’m here and happy that I am privileged enough to do that.
In the future, I’ll be writing on everything, from veganism, to LGBT current affairs, as well as music, poetry, and, naturally, the ins and outs of disabled living. But for now, I am Lucy Hannah and this is me having a life.
2 thoughts on “This is the END OF THE ROAD!”
Good for you!!
I have Fibro & hypermobility diagnoses as well. And I have got a powerchair too,
(Plus my hands like to tremor and hit the wrong button and send too early! Haha!)
A lot of people expected me to be sad and thought my chair was a sign I was giving up. But it’s the total opposite!! My chair gives me some independence & freedom back! I can go out with my family now, and my hubby can walk along besides me, not stuck behind me pushing!
You get out there & enjoy life! I look forward to reading more about your adventures!
I’ve started my own blog about living with chronic illness and how art & craft helps me cope. I’d love to see you over there!
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